| dc.contributor | Departament de Salut |
| dc.contributor.author | Mallol, Cristina |
| dc.contributor.author | Reig, R. |
| dc.contributor.author | Francisco-Bordas, Roser |
| dc.contributor.author | Magrinyà-Rull, Pilar |
| dc.contributor.author | Torrent-Farnell, Josep |
| dc.contributor.author | Jiménez-Villa, Josep |
| dc.contributor.author | Franch, Ll. |
| dc.contributor.author | Guarga-Rojas, Alejandro |
| dc.contributor.author | Altabella, D. |
| dc.contributor.author | Rivera, J. |
| dc.contributor.author | Ricart-Conesa, Assumpta |
| dc.contributor.author | Acebes, Xenia |
| dc.date.accessioned | 2022-01-18T14:24:25Z |
| dc.date.available | 2022-01-18T14:24:25Z |
| dc.date.issued | 2021-11 |
| dc.identifier.citation | Mallol C, Reig R, Francisco R, Magrinyà P, Torrent J, Jimenez J, et al. Catalonia's care model for rare diseases. Poster presented at: 44th IHF World Hospital Congress; 2021 November 8-11; Barcelona. |
| dc.identifier.uri | https://hdl.handle.net/11351/6827 |
| dc.description | Malalties rares; Xarxes d'unitats d'expertesa clínica; XUEC; Equips multidisciplinaris |
| dc.description.abstract | El Comitè Europeu de Salut defineix les malalties rares (MR) com "malalties cròniques debilitants que amenacen la vida i que tenen una prevalença tan baixa que calen esforços especials combinats per abordar-les". Constitueixen entitats clíniques molt heterogènies, multisistèmiques i cròniques que requereixen un enfocament multidisciplinari. Les MR es defineixen amb una prevalença inferior a 1 de cada 2000 persones a Europa. |
| dc.language.iso | eng |
| dc.publisher | Servei Català de la Salut |
| dc.rights | Attribution-NonCommercial-NoDerivatives 4.0 International |
| dc.rights.uri | http://creativecommons.org/licenses/by-nc-nd/4.0/ |
| dc.source | Scientia |
| dc.subject | Malalties rares |
| dc.subject | Serveis sanitaris - Catalunya |
| dc.subject.mesh | Rare Diseases |
| dc.subject.mesh | Health Services |
| dc.subject.mesh | Catalonia |
| dc.title | Catalonia's care model for rare diseases |
| dc.type | info:eu-repo/semantics/conferenceObject |
| dc.subject.decs | enfermedades raras |
| dc.subject.decs | servicios de salud |
| dc.subject.decs | Cataluña |
| dc.relation.conferencename | The 44th IHF World Hospital Congress |
| dc.relation.conferencedate | 2021-11-08 |
| dc.relation.conferenceplace | Barcelona |
| dc.type.version | info:eu-repo/semantics/publishedVersion |
| dc.audience | Professionals |
| dc.contributor.authoraffiliation | Servei Català de la Salut (CatSalut), Generalitat de Catalunya, Barcelona, Spain |
| dc.rights.accessrights | info:eu-repo/semantics/openAccess |
