Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain: a cross-sectional study

Carmona, Ada del Mar; Jiménez Arjona, María Josefa; Naranjo Velasco, Virginia; Ochoa, Nuria; Blanco, Isabel; Becerra Muñoz, Víctor Manuel; Barberà, Joan Albert; López Meseguer, Manuel

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Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain: a cross-sectional study, 2025 (203.0Kb)

Author

Carmona, Ada del Mar

Jiménez Arjona, María Josefa

Naranjo Velasco, Virginia

Ochoa, Nuria

Blanco, Isabel

Becerra Muñoz, Víctor Manuel

Barberà, Joan Albert

López Meseguer, Manuel

Date

2025-11

Permanent link

http://hdl.handle.net/11351/14032

DOI

10.1093/eurjcn/zvaf108

ISSN

1873-1953

WOS

001574599700001

PMID

40622849

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Abstract

This study aimed to determine how often health-related quality of life (HRQoL) is assessed in patients with pulmonary arterial hypertension (PAH) and to elucidate which tools are most frequently used in a real-life setting. We conducted a multicentric retrospective cross-sectional analysis of 3628 PAH patients enrolled in the Spanish Registry of Pulmonary Arterial Hypertension (REHAP) from 2007 to 2023. HRQoL questionnaires were used in only 67 patients (1.8%). Among them, generic tools were the most used (SF-36 in 16.9% and EQ5D in 10.2%). These findings highlight a marked underutilization of HRQoL assessment tools in PAH patients included in REHAP.

Keywords

Pulmonary arterial hypertension; Quality of life

Bibliographic citation

Carmona Segovia ADM, Becerra-Muñoz VM, Jiménez Arjona MJ, Naranjo Velasco V, Ochoa N, Barberà JA, et al. Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain. A cross-sectional study. Eur J Cardiovasc Nurs. 2025 Nov;24(7):zvaf108.