dc.contributor | Vall d'Hebron Barcelona Hospital Campus |
dc.contributor.author | Bassanese, Giulia |
dc.contributor.author | Wlodkowski, Tanja |
dc.contributor.author | Servais, Aude |
dc.contributor.author | Heidet, Laurence |
dc.contributor.author | Roccatello, Dario |
dc.contributor.author | Emma, Francesco |
dc.contributor.author | Ariceta Iraola, Gema |
dc.date.accessioned | 2022-01-12T18:24:00Z |
dc.date.available | 2022-01-12T18:24:00Z |
dc.date.issued | 2021-06-02 |
dc.identifier.citation | Bassanese G, Wlodkowski T, Servais A, Heidet L, Roccatello D, Emma F, et al. The European Rare Kidney Disease Registry (ERKReg): objectives, design and initial results. Orphanet J Rare Dis. 2021 Jun 2;16:251. |
dc.identifier.issn | 1750-1172 |
dc.identifier.uri | https://hdl.handle.net/11351/6777 |
dc.description | Epidemiologia; Nefrologia pediàtrica; Registre |
dc.description.sponsorship | Open Access funding enabled and organized by Projekt DEAL. The ERKReg project was made possible by a European Union grant (Chafea #777303) within the Third Health Programme “ERN-2016—Framework Partnership Agreement 2017–2021”. Additional support was received by ERKNet within the same framework. Further support for the development of the registry was kindly provided by the ERA-EDTA Workgroup for Inherited Kidney Diseases (WGIKD). |
dc.language.iso | eng |
dc.publisher | BMC |
dc.relation.ispartofseries | Orphanet Journal of Rare Diseases;16 |
dc.rights | Attribution 4.0 International |
dc.rights.uri | http://creativecommons.org/licenses/by/4.0/ |
dc.source | Scientia |
dc.subject | Ronyons - Malalties - Epidemiologia |
dc.subject | Malalties rares - Epidemiologia |
dc.subject | Nefrologia pediàtrica |
dc.subject.mesh | Kidney Diseases |
dc.subject.mesh | /epidemiology |
dc.subject.mesh | Rare Diseases |
dc.subject.mesh | Cohort Studies |
dc.title | The European Rare Kidney Disease Registry (ERKReg): objectives, design and initial results |
dc.type | info:eu-repo/semantics/article |
dc.identifier.doi | 10.1186/s13023-021-01872-8 |
dc.subject.decs | enfermedades renales |
dc.subject.decs | /epidemiología |
dc.subject.decs | enfermedades raras |
dc.subject.decs | estudios de cohortes |
dc.relation.publishversion | https://doi.org/10.1186/s13023-021-01872-8 |
dc.type.version | info:eu-repo/semantics/publishedVersion |
dc.audience | Professionals |
dc.contributor.organismes | Institut Català de la Salut |
dc.contributor.authoraffiliation | [Bassanese G, Wlodkowski T] Division of Pediatric Nephrology, Center for Pediatrics and Adolescent Medicine, University of Heidelberg, Heidelberg, Germany. [Servais A] Nephrology and Transplantation Department, Centre de Référence des Maladies Rénales Héréditaires de l’Enfant et de l’Adulte, Necker University Hospital, APHP, Université de Paris, Paris, France. [Heidet L] APHP, Pediatric Nephrology Unit, Centre de Référence des Maladies Rénales Héréditaires de l’Enfant et de l’Adulte (MARHEA), Hôpital Universitaire Necker-Enfants Malades, 75015 Paris, France. [Roccatello D] Nephrology and Dialysis Unit, San Giovanni Hub Hospital and Department of Clinical and Biological Sciences, University of Turin, Turin, Italy. [Emma F] Division of Nephrology, Bambino Gesù Children’s Hospital IRCCS, Rome, Italy. [Ariceta G] Servei de Nefrologia Pediàtrica, Vall d’Hebron Hospital Universitari, Barcelona, Spain |
dc.identifier.pmid | 34078418 |
dc.identifier.wos | 000660625000001 |
dc.rights.accessrights | info:eu-repo/semantics/openAccess |