Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain: a cross-sectional study

Carmona, Ada del Mar; Jiménez Arjona, María Josefa; Naranjo Velasco, Virginia; Ochoa, Nuria; Blanco, Isabel; Becerra Muñoz, Víctor Manuel; Barberà, Joan Albert; López Meseguer, Manuel

dc.contributor	Vall d'Hebron Barcelona Hospital Campus
dc.contributor.author	Carmona, Ada del Mar
dc.contributor.author	Jiménez Arjona, María Josefa
dc.contributor.author	Naranjo Velasco, Virginia
dc.contributor.author	Ochoa, Nuria
dc.contributor.author	Blanco, Isabel
dc.contributor.author	Becerra Muñoz, Víctor Manuel
dc.contributor.author	Barberà, Joan Albert
dc.contributor.author	López Meseguer, Manuel
dc.date.accessioned	2025-11-06T11:33:44Z
dc.date.available	2025-11-06T11:33:44Z
dc.date.issued	2025-11
dc.identifier.citation	Carmona Segovia ADM, Becerra-Muñoz VM, Jiménez Arjona MJ, Naranjo Velasco V, Ochoa N, Barberà JA, et al. Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain. A cross-sectional study. Eur J Cardiovasc Nurs. 2025 Nov;24(7):zvaf108.
dc.identifier.issn	1873-1953
dc.identifier.uri	http://hdl.handle.net/11351/14032
dc.description	Pulmonary arterial hypertension; Quality of life
dc.description.abstract	This study aimed to determine how often health-related quality of life (HRQoL) is assessed in patients with pulmonary arterial hypertension (PAH) and to elucidate which tools are most frequently used in a real-life setting. We conducted a multicentric retrospective cross-sectional analysis of 3628 PAH patients enrolled in the Spanish Registry of Pulmonary Arterial Hypertension (REHAP) from 2007 to 2023. HRQoL questionnaires were used in only 67 patients (1.8%). Among them, generic tools were the most used (SF-36 in 16.9% and EQ5D in 10.2%). These findings highlight a marked underutilization of HRQoL assessment tools in PAH patients included in REHAP.
dc.language.iso	eng
dc.publisher	Oxford University Press
dc.relation.ispartofseries	European Journal of Cardiovascular Nursing;24(7)
dc.rights	Attribution-NonCommercial 4.0 International
dc.rights.uri	http://creativecommons.org/licenses/by-nc/4.0/
dc.source	Scientia
dc.subject	Pacients - Satisfacció
dc.subject	Hipertensió pulmonar
dc.subject	Qüestionaris
dc.subject	Artèria pulmonar
dc.subject.mesh	Surveys and Questionnaires
dc.subject.mesh	Quality of Life
dc.subject.mesh	Hypertension, Pulmonary
dc.subject.mesh	Pulmonary Artery
dc.title	Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain: a cross-sectional study
dc.type	info:eu-repo/semantics/article
dc.identifier.doi	10.1093/eurjcn/zvaf108
dc.subject.decs	encuestas y cuestionarios
dc.subject.decs	calidad de vida
dc.subject.decs	hipertensión pulmonar
dc.subject.decs	arteria pulmonar
dc.relation.publishversion	https://doi.org/10.1093/eurjcn/zvaf108
dc.type.version	info:eu-repo/semantics/publishedVersion
dc.audience	Professionals
dc.contributor.organismes	Institut Català de la Salut
dc.contributor.authoraffiliation	[Carmona Segovia ADM, Becerra-Muñoz VM] CIBERCV, Centro de Investigación Biomédica en Red de Enfermedades Cardiovasculares, Instituto de Salud Carlos III, Spain. University of Malaga, Málaga, Spain. Instituto de Investigación Biomédica de Málaga y Plataforma en Nanomedicina (IBIMA-Plataforma BIONAND), Malaga, Spain. Unidad de Gestión Clínica Área del Corazón, Hospital Universitario Virgen de la Victoria, Málaga, Spain. [Jiménez Arjona MJ, Naranjo Velasco V] Servicio de Medicina Interna, Hospital Jerez de la Frontera, Ronda de Circunvalación, Cádiz, Spain. [Ochoa N] CIBERCV, Centro de Investigación Biomédica en Red de Enfermedades Cardiovasculares, Instituto de Salud Carlos III, Spain. Unidad Multidisciplinar de Hipertensión Pulmonar, Servicio de Cardiología, Hospital Universitario 12 de Octubre, Madrid, Spain. [Barberà JA, Blanco I] Department of Pulmonary Medicine, Pulmonary Hypertension Unit, Hospital Clínic, University of Barcelona, Barcelona, Spain. Servei de Pneumologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (CIBERES), Instituto de Salud Carlos III, Spain. [López-Meseguer M] Servei de Pneumologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (CIBERES), Instituto de Salud Carlos III, Spain
dc.identifier.pmid	40622849
dc.identifier.wos	001574599700001
dc.rights.accessrights	info:eu-repo/semantics/openAccess